基于互联网招募的孤独症谱系障碍专病队列建设概况及启示

Overview and implications of the cohort construction for autism spectrum disorders based on Internet recruitment

基于互联网招募的孤独症谱系障碍专病队列建设概况及启示

Author: Chen Xin, Gao Hui, Wu De, Tao Fangbiao

Source: Chinese Journal Of School Health

DOI: 10.16835 / j.cnki.1000-9817.2025038

Abstract
The construction of autism spectrum disorders (ASD) specialty cohorts in China is still in its infancy, and the cost-effectiveness is insufficient when relying on diagnostic and treatment processes of child health care to collect ample and high-quality data. After 2000, the United States Simons Foundation's ASD Research Initiative, the Early ASD Risk Longitudinal Investigation (EARLI),and the British ASD Study of Infant Siblings ( BASIS),which have been built based on Internet recruitment, have provided new insight for the construction of large-sample ASD specialty cohorts in China. Future research can further explore and optimize the methods of Internet recruitment,and establish a more comprehensive and accurate ASD specialty cohorts.
Keywords: Autistic disorder; Cohort studies; Databases, bibliographic; Child

摘要：

中国孤独症谱系障碍(ASD)专病队列的建设尚在起步阶段，依托儿童保健等诊疗过程采集的数据使其成本-效益不足。2000年后，基于互联网招募建设的美国西蒙斯推动ASD研究、美国早期ASD风险纵向调查和英国婴幼儿ASD同胞研究等，为中国建设ASD大样本专病队列提供了新思路。未来的研究可进一步探索和优化互联网招募的方法，建立更全面、准确的ASD专病队列。

关键词：孤独性障碍；队列研究；数据库；文献型；儿童